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Saturday, 17 July 2010

Not updating this any more

Please refer to my new blog :)

Friday, 2 July 2010

see my new blog...

Travels to Bulgaria will be replacing this one :)

Monday, 21 June 2010

what I know is not right with me...

1. 74/84 scale primary MS Fatigue - ugh... if the Liberation gives me only one benefit, I hope it is reducing the fatigue
2. Brain fog
3. difficulty absorbing information - I'm ok once it is in at retrieving it (though a bit slow) this is likely why I haven't been able to
concentrate to read books
4. numb stripe down the outside of my left calf
5. numb stripe on left side of face from my chin to my lower left nostril
6. trouble focusing my eyes
7. sensitivity to heat - legs turn into wet cement & the fatigue is quadrupled
8. trouble walking heel/toe (though my physio lady is working with me on that - need to have a wall beside me or my cane so I
don't tip over - realize that's why I've been walking without bending my ankles for so long... helps me balance!
9. trouble retrieving words
10. standing at the sink to wash dishes - overheat, fatigue, unco-ordination
11. unable to clean the bathtub/shower in one day - I pick away at it
12. unable to ride my bicycle
13. unable to rollerblade (this may be attributable to something other than MS... we'll see! LO)
14. unable to ski due to helmet - overheat, legs fail... you know the drill...
15. no edit button when I'm tired - swear more, no tolerance though the new bf helped a lot :)!
16. arms shake when I'm hot or really fatigued
17. grip strength is the sh*ts... getting a bit better with the creepy gel silly putty stuff I got from my OT! (Thanks Erin - you
18. Too tired to cook, so I'm eating take out which is bad... or I just eat salad with no protein
..... too tired... I took all day to get to 18.... I'll add tomorrow... :)
Nap time


Just got confirmation of my flights... Calgary to Frankfurt; Frankfurt to Sofia.... YAY

Also got confirmation of the hotel...

29 more sleeps :)

Monday, 31 May 2010

keeping track...

2:05 dad just drove me home... I'm so tired I can hardly move
I am super fatiguted & going to have a nap now
I didn't go grocery shopping or take my bottles to the depot due to fatigue

Keeping track...

10:20 am... boy am I weak... too tired to have a shower today - have to take my recycling to the depot before it takes over my condo! 2 bags - will carry those to the car on my way.
Taking the car back to dad's & he'll drive me home - I'll put a load of laundry in before I leave - hopefully I'll have the strength to put it in the dryer when I get back...
My arms are super weak, I'm dizzy & having trouble focusing & I'm really shaky.
the grocery shopping will have to wait for another day

keeping track...

so out for lunch yesterday - was out for a total of 3.5 hours including transportation time... my friend drove us to the Saskatoon Berry Farm just south of Calgary - we went to the restaurant - ate - walked around the store (me with cane in hand - thank God - really tippy). Couldn't go in the greenhouse - too hot & didn't need to overheat on top of how fatigued I was already!

I was so exhausted when I got home, I lay down on the couch, turned on the TV & woke up 4.5 hours later! Thanks Bill for texting me :) otherwise I'd still be asleep!
I woke up, made bacon & eggs (quickest thing I had) lay back down on the couch & proceeded to fall asleep again! Woke up a couple of hours later & went to bed & slept 7.5 hours.... still tired when I woke up

This is f*cking ridiculous! The fatigue is kicking my ass! I am doing everything right - MS diet, MS vitamins/minerals/supplements, resting - what the f*ck is going on? Is the MS getting worse? I need liberation NOW! F*ck I wish they'd call me to make an appointment! My friend is in Bulgaria as I type having the procedure done - all the best my friend and I hope it does wonders for you :)